Sunday, August 01, 2010

anniversary

an unpublished post from last wednesday...somehow thought i published it, but didn't???

***
 a year ago today...part of my skull was removed & by this time dr welling was finding the (acoustic neuroma) tumor, which i named harold, & was removing it, piece by piece. i woke up this morning to take my morning dose of pills--okay, correction: wes woke me up this morning & gave me my pills (yes, what a man)--& thought to myself, this was after that stupid & painful central line was inserted. after i was given some drugs to calm me down. i was so scared...quietly crying, trembling. good stuff, right? & finally the calm-me-down drugs started to work, i was wheeled into the OR, & i remember dr welling saying something to the anesthesiologist to the effect of: let's just put her out first then shave her head. then the very sweet anesthesiologist held my hand & told me i was in good hands, then dr welling smiled at me with just his eyes showing above the surgical mask & told me said something comforting & then i was told to count backwards from ten.

the next thing i knew, harold was gone, & the anesthesiologist was softly patting my cheeks, saying "sweet heidi, wake up"...i had so much pain meds in me at that point i didn't really feel much of anything but a great relief that i came out alive. there was this small chance that the surgery could somehow go terribly wrong & i could totally die--which of course, i kept telling myself leading up to the surgery that it wouldn't happen...but it was still a natural fear, right?

there are a few funny moments from that day...i remember in the surgery recovery room some older lady in a bed near me kept farting so loud, making the nurses laugh & me complain...i remember my family coming to visit me--but in my memory i have them all lined up in a row, like in a fish-eye picture, all blurred in together. but in reality, they were only allowed to come in 1 or 2 at a time. so somehow my mind just put them all together, with these goofy smiling faces. this was the place when i started to notice how much pain i was in & that my left ear sounded like someone was driving a lawn mower over my head--& when no one was talking it sounded like a waterfall was nearby. this was also the place where i woke up & thought i had to be dying & when jesus comforted me like heaven on earth.

i just can't believe it was a year ago. it seems like such an ordinary day. & as i'm sitting here, there is probably someone in the OSU SICU recovering from the same surgery with the same  ENT surgeon, anesthesiologist, & neurosurgeon.

i wish i could say i was back to what i was on july 27, 2009--but i'm not. i don't know if it's from the surgery or if the surgery just kicked my immune system so hard, forcing all these autoimmune troubles to flare up at once. i still can't feel most of the left side of my face, lips & tongue. on bad days, my  nose & left eye are numb; on good days my chin, lips & upper cheek are semi-awake with sensation. the tinnitus in my left ear was better 6 months ago & has suddenly started getting much worse the past few weeks. it again sounds like water is running if i'm talking to someone or on the phone or in a busy, loud place. *suck*   one thing that healed quickly was my balance. sure, they took a balance nerve out but my right side has adjusted to that loss & is now compensating. when i'm really tired or have a slight cold, i get very unbalanced quickly. if it's dark, i run into the walls or stumble a bit. if i've had a drink of alcohol, i know i need to have something to hold onto while walking. but it's really not that annoying. i know i can't close my eyes & not hold onto something for support. it's constant, so that's good--i know what to expect. i haven't tried riding a bike (well, i've taken addy's for a spin but she has training wheels!).

sooo...this year has been difficult.  i was so confused & angry at god for awhile, for letting or making me go through this...& in just the past few months he has given me more hope & joy & comfort in a way that only god can. i know one day i will have the energy & ability to garden like i used to, to play with my kids like i used to, to feel wes' kiss on my lips like i used to, to not hear this super loud ringing in my ear like i used to (okay, well, i used to have a very soft tinnitus, so...even that i would welcome back compared to what's ringing now)...

but it's also been a year of intense experiences, joyful times, sad times...but i think it has made me better, at least emotionally. it has given me perspective & that's always good. looking back, i can't believe how quickly the surgery site healed & never expected the setbacks that came (& are still hanging around).

so. a year ago today was intense & i'm super glad to be in the present...

1 comment:

  1. We're pretty glad you are living in the present, too!! Very glad, dear heart.

    You have been so courageous and have coped as only you could with all of the limitations handed you throughout all of this, this past year. And your mum knows that you are a very good faker -- and I know that acting like you feel better than you do is hardest of all sometimes.... As you have tried to put words to what has happened to you and the frustration and hurt and just plain helplessness at losing health leads to, I'm proud to watch you struggle to overcome. And I think you have. Not back to total health, but you know what overcoming is all about now.

    Some would count this as a "lost year". You are wise to say otherwise.

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